


| AMMF |



| "There isn't any other way that I can say how I feel about EB and how it has affected my life better than "I HATE THIS DISEASE!" Although the loss of my daughter will always be a burden on my heart, it has made me a better person. Ava has taught me to be thankful for what I have and how to persevere. She has opened my eyes to how many families are affected by this devastating disease and need help emotionally, financially, & physically. I owe it to Ava to continue helping with the fight against EB until there is a CURE." CoFounder Father of Ava Elizabeth Medeiros Troy Medeiros |

| PROUD PARTICIPANTS IN THE PARTNER OF HOPE PROGRAM |
| "it's the worst (EB). I mean I can't see anything else that causes more pain from the moment your born to the moment you die" Susan Tom Mother of 13 children - 11 are adopted children with special needs Documentary- My Flesh and Blood |

| Get your EB Awareness Video Now!!! Since it is a free video, we must limit one per person/address. Email us your request including your name & address. If shipping outside the U.S., a shipping cost may apply. |
| MISSION STATEMENT We will provide emotional, physical, and financial support to EB families and organizations that are dedicated to providing support and research. The day will come when we will no longer be needed, AND THAT IS OUR GOAL... |
| AVA MEDEIROS MEMORIAL FUND Established February 2008 by EverlastingButterfly.com |

