| AMMF |
Awareness is the key to Support, which is the key to finding a CURE!!
| "There isn't any other way that I can say how I feel about EB and how it has affected my life better than "I HATE THIS DISEASE!" Although the loss of my daughter will always be a burden on my heart, it has made me a better person. Ava has taught me to be thankful for what I have and how to persevere. She has opened my eyes to how many families are affected by this devastating disease and need help emotionally, financially, & physically. I owe it to Ava to continue helping with the fight against EB until there is a CURE." CoFounder Father of Ava Elizabeth Medeiros Troy Medeiros |
| PROUD PARTICIPANTS IN THE PARTNER OF HOPE PROGRAM |
AMMF was founded by Melanie and Troy Medeiros, the parents of Ava Elizabeth,
who lost her battle with EB at only four months of age. Since the loss of their 2nd
daughter, they have been dedicated to promoting awareness of Epidermolysis
Bullosa. They have been active through events, local business and television ads,
fund raising, the creation and distribution of a Free EB Awareness Video, and of
course through their website.
In 2008, they were approached by a friend, Michael Mell who is also a co-founder
of AMMF, about organizing an event to raise money for an EB organization. AMMF
was formed not only in the memory of Ava, but all EB Angels.
AMMF is dedicated to spreading awareness along with being active in this fight
against EB. Ava's life and death has inspired the founders to do whatever they can
to make a difference in the lives affected by EB.
All AMMF Staff are 100% dedicated volunteers. AMMF does not have any paid staff ,
which allows 100% of funds raised above costs to be donated. Although AMMF
tries to minimize any overhead cost, there is a small portion used to restock
general operating supplies, such as prints , event costs, etc. All members donate
their time, energy, and talents to assisting AMMF to be successful.
Hopefully one day through research there will be a CURE for this devastating
disease.
We hope that AMMF will improve the quality of life of everyone affected by EB.
who lost her battle with EB at only four months of age. Since the loss of their 2nd
daughter, they have been dedicated to promoting awareness of Epidermolysis
Bullosa. They have been active through events, local business and television ads,
fund raising, the creation and distribution of a Free EB Awareness Video, and of
course through their website.
In 2008, they were approached by a friend, Michael Mell who is also a co-founder
of AMMF, about organizing an event to raise money for an EB organization. AMMF
was formed not only in the memory of Ava, but all EB Angels.
AMMF is dedicated to spreading awareness along with being active in this fight
against EB. Ava's life and death has inspired the founders to do whatever they can
to make a difference in the lives affected by EB.
All AMMF Staff are 100% dedicated volunteers. AMMF does not have any paid staff ,
which allows 100% of funds raised above costs to be donated. Although AMMF
tries to minimize any overhead cost, there is a small portion used to restock
general operating supplies, such as prints , event costs, etc. All members donate
their time, energy, and talents to assisting AMMF to be successful.
Hopefully one day through research there will be a CURE for this devastating
disease.
We hope that AMMF will improve the quality of life of everyone affected by EB.
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| "it's the worst (EB). I mean I can't see anything else that causes more pain from the moment your born to the moment you die" Susan Tom Mother of 13 children - 11 are adopted children with special needs Documentary- My Flesh and Blood |
| Get your EB Awareness Video Now!!! Since it is a free video, we must limit one per person/address. Email us your request including your name & address. If shipping outside the U.S., a shipping cost may apply. |
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| MISSION STATEMENT We will provide emotional, physical, and financial support to EB families and organizations that are dedicated to providing support and research. The day will come when we will no longer be needed, AND THAT IS OUR GOAL... |
| AVA MEDEIROS MEMORIAL FUND Established February 2008 by EverlastingButterfly.com |
