www.EverlastingButterfly.com
| People with EB struggle every day with standard products that most take for granted. Such as shoes, clothing, child care, etc. Due to the fragility of the skin, clothing or shoes that are not EB Friendly can cause painful sores and trauma to the skin. Over the years various products have been developed to help comfort those with sensitive skin. This page is intended to help those looking for alternatives to better comfort those who truly deserve it. If you have any suggestions, please forward them to EverlastingButterfly.com to admin@everlastingbutterfly.com |
Fuzzi Bunz diapers are EB friendly.
Like disposable diapers, Fuzzi Bunz
have a slim fit while retaining a lot of
liquid. Unlike disposables, you’ll
save a lot of money! Buttery soft
micro fleece fabric stays dry against
baby’s skin while super absorbent
inserts retain liquid in a pocket
within the diaper.
Also, 8% of every sale through
EverlastingButterfly.com will be
donated to Debra of America. In
order for nurturedfamily.com to
know where the donation goes, you
must click on the banner above
when ordering.
In cases where babies have severe feeding problems,
such as with Down Syndrome, cleft lip/palate,
neurological disfunction, disorganized sucking symptoms
and others, the Haberman Feeder offers analternative to
spoons,enlarged and/or extra holes in the nipple, and
nasogastric tubes. The Haberman Feeder is so effective
and easy to use that it can actually change feeding
sessions from adifficult or even traumatic experience into
a pleasurable activity for the mother and baby. A
specially designed valve and teat adjust milk flow to suit
baby's needs. A one-way valve prevents flooding and
overwhelming the baby. If the baby cannot nurse at all,or
just needs a little help, the bottle can be squeezed to
release a limited volumeof milk.
Haberman Feeder
such as with Down Syndrome, cleft lip/palate,
neurological disfunction, disorganized sucking symptoms
and others, the Haberman Feeder offers analternative to
spoons,enlarged and/or extra holes in the nipple, and
nasogastric tubes. The Haberman Feeder is so effective
and easy to use that it can actually change feeding
sessions from adifficult or even traumatic experience into
a pleasurable activity for the mother and baby. A
specially designed valve and teat adjust milk flow to suit
baby's needs. A one-way valve prevents flooding and
overwhelming the baby. If the baby cannot nurse at all,or
just needs a little help, the bottle can be squeezed to
release a limited volumeof milk.
Haberman Feeder
FOR NEW ENGLANDERS!!
Robeez are available at the
Mary Jane Clothing Store in
Newburyport Massachusetts.
Click on either pic to link to
their site....
Robeez are available at the
Mary Jane Clothing Store in
Newburyport Massachusetts.
Click on either pic to link to
their site....
All Pro SPF 30+
It is like no other sunscreen on the market today. It's main advantage is it's ability to
invisibly adhere to the skin without traditional alcohol, silicone or other organic
compounds. We use our new patented "Invisicare Polymer Delivery System" which
binds the sunscreen to the skin without it feeling like you are wearing it. The result is
a longer persistence protection and a drier feel to the skin.
All profit from sales will be donated to the Western Horizon Ranch For Kids With
Serious Skin Diseases.
Click Here to get more information on the Western Horizon Ranch For Kids With
Serious Skin Diseases.
With every purchase of an 8oz. bottle of All Pro Sunscreen, you receive a free "Be
Suncare Aware" wristband!!!
It is like no other sunscreen on the market today. It's main advantage is it's ability to
invisibly adhere to the skin without traditional alcohol, silicone or other organic
compounds. We use our new patented "Invisicare Polymer Delivery System" which
binds the sunscreen to the skin without it feeling like you are wearing it. The result is
a longer persistence protection and a drier feel to the skin.
All profit from sales will be donated to the Western Horizon Ranch For Kids With
Serious Skin Diseases.
Click Here to get more information on the Western Horizon Ranch For Kids With
Serious Skin Diseases.
With every purchase of an 8oz. bottle of All Pro Sunscreen, you receive a free "Be
Suncare Aware" wristband!!!
SITES TO VISIT TO FIND OUT MORE ABOUT EB FRIENDLY PRODUCTS
Befriend EB is an organization that assists families and children living in Michigan, who suffer from EB. Whether it is assisting financially, fund raising, or respite care. Visit www.befriendeb.com |
| This store is created and run by Cindi and Cristina, a Mom and Daughter team. Their inspiration for creating this store is to provide helpful, affordable products for families affected by Epidermolysis Bullosa. Cristina, now age 22, was born with a severe form of EB. PLEASE VISIT THIS BEAUTIFUL ON-LINE STORE CLICK ON THE LOGO TO LINK TO THE SITE |
Courtney Cox's - Coco Pallette
All proceeds donated to an EB
Foundation.
Purchase at sephoria.com
All proceeds donated to an EB
Foundation.
Purchase at sephoria.com
| READ ARTICLE IN THE CHICAGO TRIBUNE |
| A donation of $.25 from each sale of three products from the NuSkin Epoch line: Firewalker, IceDancer and Glacial Marine Mud, will be donated to the EBMRF. To purchase these products and make a difference for EB patients, visit www.nuskin.com |
| COACH creates their first fragance, which will benefit EBMRF |
| www.EverlastingButterfly.com Yahoo Webhosting |
| EBInfo.Homestead.com Through the Eyes of a Patient |
Hi Troy,
My name is Glenda Mendive, my 22 month old son has DDEB. I love your website and
you have done a wonderful job of remembering your beautiful daughter. I know on the
message board you noted that you have added some EB friendly products and requested
others. We haven't been able to put shoes on our son, Dalton yet because his feet are
his problem area, so we buy Robeez for him. They are slippers that are made of soft
leather that come in all types of designs. They have been a godsend to us. Their
website is www.robeez.com
take care
Glenda Mendive
My name is Glenda Mendive, my 22 month old son has DDEB. I love your website and
you have done a wonderful job of remembering your beautiful daughter. I know on the
message board you noted that you have added some EB friendly products and requested
others. We haven't been able to put shoes on our son, Dalton yet because his feet are
his problem area, so we buy Robeez for him. They are slippers that are made of soft
leather that come in all types of designs. They have been a godsend to us. Their
website is www.robeez.com
take care
Glenda Mendive
| Visit Pedors for there EB Friendly Shoes for Children, Women, and Men at www.pedors.com A dollar for every shoe sold is donated to EBMRF. |
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| EB Info World Newsletter |
| EB ZONE Yahoo Group |
| EB Angels Yahoo Group |
| EB Families Yahoo Group |
| Debra's EB Awareness Bracelets |
| The bracelets read "Help DebRA Cure Epidermolysis Bullosa". $3 per bracelet or $5 for two bracelets, plus shipping. To place an order, please print and mail the Order Form. Thank you for supporting DebRA and the EB community. |
| EB Awareness Bracelets by Princess Sylvai. A portion of each sale will be donated to an EB organization along with assisting her with her son Nicky's growing medical expenses. CLICK ON EITHER LINK ABOVE |
DO YOU KNOW OF ANY OTHER EB FRIENDLY
PRODUCTS? LET US KNOW....
PRODUCTS? LET US KNOW....
