EB Post Archives

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Here you will find an archive of links that are EB related. Due to how each site handles their archives, some of the links may not be
active. Everlastingbutterfly.com tries to maintain up to date news links relating to EB on the EB Billboard. Once the link is two
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SEPTEMBER 2006

Medical Mystery of Missing Fingerprints Solved
Seed Magazine - New York,NY,USA
... surprised Lugassy and her colleagues most was that a mutation in KRT14 had already been linked to another genetic
disorderâ€”Epidermolysis Bullosa Simplex (EBS ...

River walker hits £100,000 charity target
Yorkshire Post Today - Leeds,Yorkshire,UK
... All the money raised has gone to DebRA, a charity that helps children with skin-blistering condition epidermolysis
bullosa. Now ...Posted 09-2106

New organization rehabilitates homes for those in need Monitor - McAllen,TX,USA
... Danny Saucedo, 8, and his brother Gilberto, 9, suffer from dystrophic epidermolysis bullosa, a skin disorder
characterized by extremely fragile skin and ...Posted 09-21-06

AUGUST 2006

Special Summer Camp For Sick Children
abc7news.com - San Francisco,CA,USA
... But they don't think about that while at Camp Arroyo. This week of organized chaos is just for fun. Cristina Perez, Camper: "I
have Epidermolysis Bullosa. ...Posted 08-22-06

MY LITTLE BUTTERFLY PRINCESS
Glasgow Daily Record - Glasgow,Scotland,UK
... Adana Forsyth was born with a rare and very painful genetic skin defect called epidermolysis bullosa, a condition that
affects one in 20,000 children. ...
Posted 08-22-06

MERSEY WADE MAN HOLDS HEAD UP HIGH
Mirror.co.uk - London,UK
... The cash will go to the charity DeBra, which helps children with rare genetic rare skin blistering disorder epidermolysis
bullosa. ...Posted 08-17-06

Courteney: I Lean on Jen
People Magazine - USA
... Cox and husband David Arquette were on hand to support a family friend whose child suffers from Epidermolysis Bullosa
(EB), an incurable genetic Posted 8-17-06

Courteney Cox Sets Record Straight On Jen & Vince
Access Hollywood - USA
On Monday night, at a fundraiser for the EBMRF (Epidermolysis Bullosa Medical Research Foundation), Courteney sat down
with Billy and said, "They didn't get ...Posted 8-17-06

Steve Young: A new chapter
Deseret News - Salt Lake City,UT,USA ... "Have you heard of EB (epidermolysis bullosa)?" Young asks. "It's a skin disease.
It's the worst thing that can happen to a human being. ...

JULY 2006

The Butterfly Girl 23-year-old Cristina Perez has a rare ...
North County Times - Escondido,CA,USA
... She knows this hour of agony soon will be over, this constant reminder of the deadly disease that has haunted her
since birth -- Epidermolysis Bullosa. ...Posted 07-31-06

WALKERS URGED TO TACKLE YORKSHIRE CHALLENGE
Community Newswire - UK
... The Debra charity, which funds research into Epidermolysis Bullosa (EB), is appealing for teams of four adventurers to
take on the Yorkshire Three Peaks 7-14-06

Ortec Issues Update on Its Three Technology Platforms for ...
Yahoo! News (press release) - USA
... supplement to the FDA to obtain marketing approval for use of cryopreserved OrCel® in the treatment of Recessive
Dystrophic Epidermolysis Bullosa (RDEB), the ...
7-8-06

City woman continues care for ill, disabled children
Lambertville Beacon - Lambertville,NJ,USA
... Estefanía is eager to learn, but her condition presents numerous roadblocks. She suffers from a condition called
Epidermolysis Bullosa, or EB for short. ...7-8-06

Family spread wings for butterfly children
Scotsman - United Kingdom
... her brother Christopher, 19, and father James, 45, are taking on the nine day trek in aid of DEBRA, the Dystrophic
Epidermolysis Bullosa Research Association ...7-8-06

JUNE 2006

Accessorize like a movie star
Chicago Tribune - United States
... One hundred percent of the proceeds will be donated to the Epidermolysis Bullosa Foundation, to fight the rare genetic skin disorder. ...Posted
06-26-06

New Technique Helps Couples Avoid Transmitting Tragic Diseases To Baby
Five couples are expecting healthy babies as a result of PGD.... Posted 06-20-06

Teen making Waves
Northern Advocate - Whangarei,New Zealand
... He has the severest form of epidermolysis bullosa, known as EB, which means he lacks the fibres that connect his skin to the rest of his body.
...Posted 06-19-06

Thick skinned
Staunton News Leader - Staunton,VA,USA
... He has epidermolysis bullosa, a rare genetic skin disease characterized by fragile skin and recurrent blister formation, according to the Dystrophic
....Posted 06-19-06

Honesdale teen beats odds
Scranton Times-Tribune - PA, USA
... Mr. Rollison was born with Epidermolysis bullosa, a rare ailment that causes blistering after minor friction or trauma to the skin. ...Posted 6-12-06

Ortec Expects To File Humanitarian Device Exemption (HDE) For Use ...
Medical News Today (press release) - UK
... clinical data, an HDE supplement allowing for the use of cryopreserved OrCel(R) in patients with Recessive Dystrophic Epidermolysis Bullosa
(RDEB) undergoing ...Posted 6-4-06

Sacre bleu!
This is Swindon - Swindon,Wiltshire,UK
... DebRA is a national charity that supports people living with Epidermolysis Bullosa , a condition that causes the skin to blister and peel. ... Posted
06-02-06

MAY 2006

Skin disorder girl's award
Sheffield Today - England,UK
... But Leanne, formerly of Deepcar, who now lives at Wisewood, refuses to allow Recessive Dystrophic Epidermolysis Bullosa or EB, which she has
suffered since ...
Posted 05-19-06

My baby joy
Greenock Telegraph - Greenock,Scotland,UK
... slightest bumb or rub. The couple don't have the disease called Epidermolysis Bullosa but carry the trigger gene. There was a one ...
Posted 05-16-06

Pupils wear it well to help brave Lucas
Leeds Today - Leeds,UK
... But despite the daily difficulties caused by Epidermolysis Bullosa (EB), Lucas has remained determined not to miss a day at his nursery. ...
Posted 05-16-06

Parents of daughter born with rare skin disorder look to God for ...
ChristianExaminer - USA
... took doctors nearly two days of research, starting on the Internet, to find that Noelle had one of the more severe forms of epidermolysis bullosa, a
disorder ...
Posted 05-16-06

The "Butterfly Boy"
KSL-TV - Salt Lake City,UT,USA
... Kadee Troop, Zach's Mom: "You can't pick him up by his armpits or it will take off all the skin under his armpit.". Zach was born with Epidermolysis
Bullosa. ...
Posted 05-16-06

APRIL 2006

DEBRA International working for a life free from pain Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization
dedicated to creating awareness and providing support for ...

Posted 04-26-06

STARS BACK CHARITY HAT AUCTION Community Newswire - UK ... Hatter eBay Auction" which will be launched this month to raise funds for people
affected by the genetic skin blistering condition EB (Epidermolysis Bullosa). ...

Posted 04-26-06

Kilkenny group to take on Kerry Challenge Kilkenny Advertiser - Kilkenny,Ireland ... Kilkenny. DEBRA Ireland is a small charity with a big mission. It was
founded in 1988 by parents of children with Epidermolysis Bullosa (EB). ...

Posted 04-12-06

MARCH 2006

'Sparkling light' goes out, but family will continue Sam's fight
Leeds Today - Leeds,UK
... Nell forged strong links with the charity, which helps people with the genetic skin condition Epidermolysis Bullosa (EB), after meeting Jonny Kennedy. ...

Posted 03-31-06

Kentucky deaths
Kentucky Post - Covington,KY,USA
... Mr. Markwell, 73, who died March 22 at his home in Sarasota, Fla., was born with a rare skin disorder called epidermolysis bullosa. ...

Posted 03-31-06

Central Ohio Business To Help Boy With Rare Disease
NBC4i.com - Columbus,OH,USA
... Mayhew. He's long exceeded his life expectancy, though his Epidermolysis Bullosa is lethal. "His skin is as thin as tissue paper. ...
Posted 3-17-06

Have Scissors...Will Travel, Craft Industry Pro On Media Blitz To ... PR Web (press release) - Ferndale,WA,USA ... "Not every day is a great day," she says,
underplaying the effects of Epidermolysis Bullosa, a painful skin condition from which she has had since birth. ... Posted 03-02-06

FEBRUARY 2006

REAL LIVES Teenage parents pray their deadly genes won't claim ...
Glasgow Sunday Mail - UK
... fatal condition. The teenagers both carry the deadly gene that triggers the skin disorder Epidermolysis Bullosa. They have already ... Posted
2-27-06

Shefali plans to join the fun
ic Solihull.co.uk - Solihull,UK
... DebRA - a charity helping children and adults in the UK affected by EB (Epidermolysis Bullosa) - a rare and currently incurable genetic skin
condition. ...

Putting a face on rare skin disorder Magazine profiles Haverhill boy, 6 By Charlie Russo, Globe Correspondent | February 16, 2006
Posted 2-16-06

Andrew Bomback, MD Journal of American Medical Association (subscription) - Chicago,IL,USA ... My first encounter with Chris, a 25-year-old
with epidermolysis bullosa, was in April, when he was admitted to the general medicine service for refractory ... Posted 02-16-06

Paul sets up home in freezer!
Clitheroe Today - Burnley,East Lancashire,UK
... The team is hoping to make as much money as possible for research into treatment for EB, epidermolysis bullosa -- a genetic condition
that causes skin ...

Posted 02-09-06

Raising funds in memory of Jay
Greenock Telegraph - Greenock,Scotland,UK
Claire Dorrian, 18, and partner Jason O'Neill, 18, were devastated when their son Jay died of epidermolysis bullosa (EB), a rare illness they
knew nothing about ...
Posted 02-09-06

Home Front Fighting a Little-Known Enemy
New York Times - United States
Well, all right, she would not initially refer to "EB" in approaching you. She would first mention the words that the letters stand for,
epidermolysis bullosa. ...
Posted 2-5-06

RETAIL GIANT BACKS HEALTH CHARITY
Community Newswire - UK
... charity of the year after the high street chain's owner, Philip Green, received a letter from a man whose teenage daughter suffers from
epidermolysis bullosa. ...
Posted 2-1-06

Walls go up to free Holtsville toddler
Newsday - Long Island,NY,USA
... Grace was born with epidermolysis bullosa, a debilitating genetic disorder that occurs once in every 50,000 births. The
condition ...
Posted 02-01-06

JANUARY 2006

Local family coping with devastating effects of EB
Salem Times Commoner - Salem,IL,USA
... Channel. The film introduced the audience to a young man who had been living with a condition known as EB (Epidermolysis Bullosa). This
..Posted 01-31-06.

Liam'sa true champion
Upper Yarra Mail - Pakenham,Victoria,Australia
... 21 February. Liam has lived with and dealt with a debilitating condition called epidermolysis bullosa all his life. His mother says ...
Posted 1-26-06

Scarred by red tape
Columbus Dispatch - Columbus,OH,USA
... she was 13 months old. She already had been diagnosed with epidermolysis bullosa, a genetic disorder with no cure or treatment. ...
Posted 1-26-06

Last holiday bouquet goes out today Tracy Press - Tracy,CA,USA
... Charities board, had the goal of extending the camp for young victims of life-threatening skin diseases like pemphigus foliaceus and
epidermolysis bullosa to a ... Posted 1-10-06

Intrepid river walker to plumb the depths for charity Alexandra Wood HE said he wouldn't do it again, but just a few months on businessman
Graham Boanas has decided to cross the Humber for a second time – underwater. Posted 1-9-06

Hell, high water and helping hands NorthJersey.com - Hackensack,NJ,USA ... And Clifton teenager Kristin Evans, born with a genetic skin disease
called epidermolysis bullosa, courageously shared her story with readers. Posted 1-3-05

On the Move Hutchinson News - Hutchinson,KS,USA ... Carlos and Marcos suffer from a genetic skin disease called dystrophic epidermolysis
bullosa, a disorder in which the fibers holding the different layers of ... Posted 12/30/05

Step out for festive walk ic Solihull.co.uk - Solihull,UK ... will have seen the Channel 4 documentary 'Jonny the Boy whose skin fell off' which
highlighted the genetic skin blistering condition, Epidermolysis Bullosa. ... Posted 12/30/05

Scott's creation is an e-card first
Pendle Today - Burnley,East Lancashire,UK
... Park High School pupil Scott Eley (11), who lives with the genetic skin condition epidermolysis bullosa (EB), has designed the card for the EB
charity DebRA. ...

Posted 12-20-05

Painful skin condition can't keep kids down
Newszap Florida - FL,USA
... Novie and Corbyn are brother and sister who suffer from a debilitating skin condition called epidermolysis bullosa (EB), a rare genetic disease
characterized ...

Posted 12-15-05

Kristin Evans won't let painful skin disease stop her attempts at ...
NorthJersey.com - Hackensack,NJ,USA
... Kristin was born with a genetic skin disease called epidermolysis bullosa, which can range in severity from mild wounds on the hands and feet
to chronic ...

Posted 12-14-05

Kindness is off and drumming in Fallbrook
San Diego Union Tribune - United States... Epidermolysis bullosa, an inherited disease, is usually fatal. Many who have it die before their first
birthday, and few live into adulthood. ...

Posted 12-14-05

Scrapbooking Expert Invites DIY Viewers to "Diversify It Yourself" Posted 12/06/05

Victorian night will roll back the years Posted 12-5-05

Research charities have 'vital role' Posted 12-05-05

Defective Skin Gene Led To Baby's Death Posted 11-21-05

Santa's bag includes a new charity for kids Posted 11-21-05

Ending 'Segregation' in Craft and Hobby Industry Posted 11-21-05

A legend's personal visit remembered Posted 11-21-05

Soldier Shot Down in Irag- Donations to be made to Debra Posted 11-21-05

A Mother Trying to Put Some Joy in What Remains of Her 2 Children's Lives Posted 11-16-05

BD12,000 payout to scalded child Posted 11-16-05

Indiana Man With Rare Disorder Beats Odds Posted 11-11-05

13 Year Old Boy Passes Away from Complications from EB Posted 11-09-05

Ortec International to Present at Rodman & Renshaw Techvest 7th Annual Healthcare Conference Posted 11-04-05

HELP MAKE THE LAST WEEK OF OCTOBER
"NATIONAL EPIDERMOLYSIS BULLOSA WEEK"

Sinclair benefits from Hatton fallout Posted 10-28-05

Award for Thymosin Beta 4 (TB4) technology ...Posted 10-28-05

My heart went out to little Amy Posted 10-28-05

True charity's Atlas at work Posted 10-24-05

Car show benefits toddler Posted 10/24/05

Ortec Raises Additional Equity Posted 10-13-05

HELP MAKE THE LAST WEEK OF OCTOBER
"NATIONAL EPIDERMOLYSIS BULLOSA WEEK"

English Title Fight to Generate Money for Debra Posted 07-29-05

Ortec International Appoints Elite Financial Communications Group to Advance Investor Awareness Posted 07-28-05

"The Boy Whose Skin Fell Off" is available through Debra UK Posted 07-21-05

Boxing Match to Raise Money for Debra Posted 07-21-05

FDA Approves Ortec's Protocol and Initiation Of Confirmatory Trial of OrCel(R) for Venous Ulcers Posted 07-20-05

FAMILY FUN DAY AT BEVERLEY Posted 07-19-05

Click Here for some pictures from Courtney Cox's Fundraiser for EBMRF Posted 7-15-05

Former ‘Friends’ star, hubby bring out stars to raise money for E.B. Posted 07-14-05

Positive in the face of pain Posted 07-12-05

Tornado teams join the long haul for charity Posted 07-12-04

eBay unveils Irish site Posted 07-06-05

Skydive for skin disease sufferer Posted 07-05-05

For these children, Wonder means a week with others who live like them: Camp shifts focus from skin ailments Posted 06-28-05

A Mother's Love Posted 06-28-05

Gloria-An Innovative Painter Who Suffers from EB Posted 06-28-05

Camp gives ailing kids week of fun Posted 06-28-05

My Hols: Mats Wilander Romance in Barbados or tennis at the Olympics? No contest Posted 06-28-05

Exploring therapies for connective tissue diseases at Jefferson Posted 06-16-05

Jonny's legacy of cash help to fellow skin disease sufferers Posted 06-14-05

eBay launches new website with charity drive Posted 06-14-05

Junctional epidermolysis bullosa and pyloric atresia in two siblings Posted 06-13-05

Article by M Peter Marinkovich, MD Posted 06-13-05

FDA Recommends that Ortec Performs a Confirmatory Trial Posted 06-06-05

Parents speak out on tragic condition Posted 06-03-05

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EXCLUSIVE TRAGIC MAX IS SO DELICATE HE CAN'T EVEN BE CUDDLED
Sunday People - UK
... Four-month-old Max suffers from an incredibly rare disease called junctional epidermolysis bullosa - also known as butterfly skin.
...

Fragile in body, not in spirit
Sun-Sentinel.com - Fort Lauderdale,FL,USA
... Emma, who has big blue eyes and just turned 2, has epidermolysis bullosa, a genetic skin disorder that causes painful blisters.
... Posted 11-27-06

PHOTO: Charity outing
Stoney Creek News Fri, 17 Nov 2006 12:25 PM PST Last month, Kiwanis Club of Hamilton Inc. Raised $1,100 for Mission Services
Thanksgiving/Christmas dinners and dEBra Canada's Halloween Party at its first Division 6 Charity Golf Outing. DEBra Canada is a
voluntary, non-profit organization dedicated to providing support for families affected by epidermolysis bullosa. Posted 11-19-06

Dolls and bears share fair for worthy cause
North Shore Times - Chatswood,NSW,Australia
... Her doll and bear-making colleagues in the Sydney Northern Districts Doll and Bear Guild support children with epidermolysis
bullosa (EB) or ``cotton wool ...Posted 11-19-06

Coulter chosen as United Way Idol
Texarkana Gazette - Texarkana,TX,USA
... Sheâ€™s the perfect person to be our first United Way Idol.â€. Coulter has a rare genetic skin condition called epidermolysis
bullosa. ...Posted 11-14-06

Dublin Port Tunnel Run
Athletics Association of Ireland - Dublin,Ireland
... DEBRA Ireland is a charity researching cures and providing support for people with Epidermolysis Bullosa (EB), a rare genetic
disorder that means skin and ...Posted 11-14-6

Genetic disease leaves boy's skin as fragile as butterfly wings
Frederick News Post (subscription) - Frederick,MD,USA
... Erik has a rare genetic disorder that most people have never heard of and even fewer can pronounce: epidermolysis bullosa
(ep-ee-der-MOL-eh-sis bull-O-sa) or EB ...

NOVEMBER 2006

DECEMBER 2006

SI parents seek cure for child's rare skin disease
New York Daily News - New York,NY,USA
... He's familiar with two letters already - E and B. The toddler knows them so well
because he suffers from a rare skin disease called EB - epidermolysis bullosa. ...

Improvements would provide wheelchair access, storage for bandages
Daily News Journal (subscription) - Murfreesboro,TN,USA
... Shardai, an eighth-grader at Smyrna Middle, was diagnosed with epidermolysis
bullosa (EB) shortly after birth. It is caused by a ...

JANUARY 2007

Jonny's set to inspire again
ic Newcastle.co.uk - Newcastle,England,UK
The programme highlighted the genetic condition Epidermolysis Bullosa - EB - and the daily battle Jonny fought. Jonny died in 2003 at the age
of 36. ...Posted 01-29-07

Smyrna student with EB named national spirit award winner
Daily News Journal (subscription) - Murfreesboro,TN,USA
SMYRNA â€” Shardai Cousino, a student at Smyrna Middle School, has been selected by the Dystrophic Epidermolysis Bullosa Research
Association of America ...

Orange Slices: Butterfly girl
OCRegister - Orange County,CA,USA
After research, doctors diagnosed her with junctional epidermolysis bullosa, a genetic disorder that affects the body's ability to hold layers of skin ...

Chic Tots Celebrity Favorite at Exclusive Boom Boom Room
Emediawire (press release) - Ferndale,WA,USA
The Boom Room's Baby and Big Kid Villa benefited the Epidermolysis Bullosa Medical Research Foundation (EBMRF), a volunteer nonprofit
foundation dedicated ...

Hollywood Moms Show Their Support for EBMRF
By Celebrity Moms(Celebrity Moms) Hollywood moms recently showed up to support the Epidermolysis Bullosa Medical
Research Foundation that helps kids with the rare skin disease. The stars participated in a luncheon and shopping fundraiser
sponsered by Coach at the ...

EJ: Many support quest for family's home makeover
Ridgefield Press Fri, 20 Apr 2007 2:55 AM PDT People care about EJ ? that is the message that supporters hope ABC TV will
get from the explosion of letters and petitions circulating around town and beyond.

Giving spirit mourned
Worcester Telegram - Worcester,MA,USA ... was born on the 20th anniversary of Martin Luther King’s assassination, afflicted
with a rare skin disease, Epidermolysis Bullosa Simplex Dowling-Meara

Butterfly girl' saved by pillow
Manchester Evening News - Manchester,England,UK Melissa suffers from a rare genetic condition called epidermolysis
bullosa, or EB, which makes her skin so sensitive it peels away when she lies down or ...

Butterfly girl's anguish eased
The Sun - London,UK The 11-year-old has the rare skin condition epidermolysis bullosa which means her skin peels away if she
lies down or touches material. ...

Girl struggles with painful skin disease
Inside Bay Area - Oakland,CA,USA Christina lives with Epidermolysis bullosa, a rare and often fatal disease in which any kind
of bodily friction causes blistering. .
Brave Xantha keeps battling
Border Mail - Albury,New South Wales,Australia
Seven-week-old Xantha was diagnosed with junctional herlitz, the most severe strain of epidermolysis bullosa, a few days after
she was born at the Wodonga ...

MARCH 2007

Students raise 'EB' awareness, funds
Palladium-Item - Richmond,IN,USA The show was named after Maxx Gregg, 3, who suffers from Epidermolysis
Bullosa. Referred to as "EB" for short, it is a rare genetic disease characterized by ...

HELPING OUT: 'Makeover' sought for EJ's home
Ridgefield Press Fri, 23 Mar 2007 2:40 AM PDT Ten-year-old EJ Carfi was born with a skin disease so severe that
the slightest touch can give him blisters. Daily life is hazardous for him ? To the point that his mother spends two
to three hours each morning bandaging him before he gets on the school bus.

Fund-raiser to help young boy
Staten Island Advance - Staten Island,NY,USA STATEN ISLAND, NY -- John, 4, has epidermylosis bullosa (EB) a
rare condition that causes his skin to blister and fall off easily. ...

K of C Makes $1000 Donation to DebRA
ParamusPost.com - Pampus,NJ,USA
DebRA of America is dedicated to finding treatments and a cure for Epidermolysis Bullosa (EB), which is a
genetic disorder. The Mother Seton Council ...

FEBRUARY 2007

Anthony tackling five peaks
Chichester Today - Bath,England,UK
Former Bishop Luffa student Anthony, who attends Loughborough University, is raising money for DebRA which helps people
who have epidermolysis bullosa (EB). ... Posted 2-22-07

Princess Ball raises nearly $1500, helps local boy
Middletown Journal - Middletown,OH,USA
The Madison Twp. boy has Epidermolysis Bullosa, a rare genetic skin disease characterized by chronic painful blistering.
...Posted 2-22-07

Handled with care
Columbus Dispatch - Columbus,OH,USA
... paper and blisters at the slightest bump, to reduce the scars and disfiguration that are the footprints of a disease called
epidermolysis bullosa. ...Posted 2-22-07

Oswego unites to help ailing toddler
Sun Publications Chicago - Chicago,IL,USA
Eric was born with a rare genetic disorder, dystrophic epidermolysis bullosa, which results in extremely fragile skin that easily
blisters. ...Posted 2-22-07

APRIl 2007

MAY 2007

Hospital offers new treatment for children with Epidermolysis Bullosa.
http://news.bbc.co.uk/1/hi/scotland/tayside_and_central/6681271.stm

Hopes rise of end to girl's constant pain as skin cell therapy trials start
The Scotsman Wed, 23 May 2007 4:45 PM PDT
ALEX Hood struggles daily against excruciating pain. She takes morphine every four hours, she has
lost the skin from large parts of her body and the fingers of her right hand are fused together.

Rare disease leaves girl with fragile skin
Bend Weekly - Bend,OR,USA Gabbie has a rare skin disorder called epidermolysis bullosa, which makes her skin susceptible to
blisters and bruises. CNS Photo by Shannon Kirschner. ...

Silly hats for charity
Charities Aid Foundation - West Malling,Kent,UK
DebRA is the UK's only support group and medical research charity working with people suffering from epidermolysis bullosa (EB),
which is a genetic illness ...

JUNE 2007

Triathlon: The Worlds Largest Triathlon RETURNS TO London's Docklands RunnersWeb
Leukaemia Research, alongside DEBRA (the national charity working on behalf of people in the UK with the genetic skin
blistering condition Epidermolysis ...

Rugby hero calling all tag enthusiasts
Kilkenny Advertiser - Kilkenny,Ireland ... will see thousands hit their local rugby pitches in order to raise much needed funds
for children and adults with Epidermolysis Bullosa (EB). ...

HAPPY DEPOSITS FOR BINGOS UK
OnlineBingo.co.uk - London,UK The UK online bingo site recently held a charity chat session to raise money for skin
condition epidermolysis bullosa and reminds members they may ...

Five peaks charity climb
Times & Star - Workington,Lake District,UK
... head girl at Keswick School and now goes to Loughborough University, decided to raise money for people with the skin
condition Epidermolysis Bullosa. ...

JULY 2007