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EverlastingButterfly.com supports the
below organizations that support EB families and
research. Every dollar donated not only assists
EB families with the overwhelming cost for care,
but also BUILDS HOPE that one day there will be
no more pain and no more bandages. So no
matter how large or small, please be sure to know
that it will make a difference.
THANK YOU FOR YOUR SUPPORT!!!!!
below organizations that support EB families and
research. Every dollar donated not only assists
EB families with the overwhelming cost for care,
but also BUILDS HOPE that one day there will be
no more pain and no more bandages. So no
matter how large or small, please be sure to know
that it will make a difference.
THANK YOU FOR YOUR SUPPORT!!!!!
| DebRA is the only national non-profit organization dedicated to both promoting research to find new treatments and a cure for Epidermolysis Bullosa and providing information and support for people with EB and their families. |
Dystrophic Epidermolysis Bullosa Research Association
| DebRA of America, Inc. 5 West 36th Street,Room 404 New York, NY 10018 Telephone: (212) 868-1573 Email: staff@debra.org |
Mailing & Administrative Offices:
Andrea Pett-Joseph a.pett@bgent.com
11812 San Vicente Blvd. Suite 125
Los Angeles, CA 90049
310-979-8078
President and Founder:
Lynn Anderson ebmrf@comcast.net
130 Sandringham Road
Piedmont, CA 94611
510-530-9600
Andrea Pett-Joseph a.pett@bgent.com
11812 San Vicente Blvd. Suite 125
Los Angeles, CA 90049
310-979-8078
President and Founder:
Lynn Anderson ebmrf@comcast.net
130 Sandringham Road
Piedmont, CA 94611
510-530-9600
| The EBMRF is a volunteer nonprofit foundation dedicated to the support of medical research of Epidermolysis Bullosa (EB), its causes, the development of successful treatments, and ultimately, its cure. |
Children's Skin Disease Foundation
a 501(c)3 non-profit corporation
712 Bancroft Road #511
Walnut Creek, CA 94598
Telephone 925-947-3825
Fax 925-947-0677
a 501(c)3 non-profit corporation
712 Bancroft Road #511
Walnut Creek, CA 94598
Telephone 925-947-3825
Fax 925-947-0677
Camp Wonder
Diseases of the skin affect thousands
of American children each year. These
diseases cause discomfort, pain,
disfigurement, disability, dependency
or death. These diseases affect not
only the children but also their entire
family. Even worse, the physical and
emotional damage caused by
childhood skin diseases will last a
lifetime.
Children's Skin Disease Foundation
(CSDF) established Camp Wonder, a
medically staffed summer camp at
Camp Arroyo's facilities in Livermore.
Camp Wonder is free to children with
serious and fatal skin disease. For one
week these children can forget their
disease and have fun!
Diseases of the skin affect thousands
of American children each year. These
diseases cause discomfort, pain,
disfigurement, disability, dependency
or death. These diseases affect not
only the children but also their entire
family. Even worse, the physical and
emotional damage caused by
childhood skin diseases will last a
lifetime.
Children's Skin Disease Foundation
(CSDF) established Camp Wonder, a
medically staffed summer camp at
Camp Arroyo's facilities in Livermore.
Camp Wonder is free to children with
serious and fatal skin disease. For one
week these children can forget their
disease and have fun!
Children's Skin Disease Foundation (CSDF) is a 501(c)3 non-profit
corporation which focuses on the unique problems of young people
who suffer from skin disease and the families who care for them.
Diseases of the skin affect thousands of American children each
year. These diseases cause discomfort, pain, disfigurement,
disability, dependency or death. These diseases affect not only the
children but also their entire family. Even worse, the physical and
emotional hurt caused by childhood skin diseases can last a lifetime.
corporation which focuses on the unique problems of young people
who suffer from skin disease and the families who care for them.
Diseases of the skin affect thousands of American children each
year. These diseases cause discomfort, pain, disfigurement,
disability, dependency or death. These diseases affect not only the
children but also their entire family. Even worse, the physical and
emotional hurt caused by childhood skin diseases can last a lifetime.
| THANK YOU FOR BEING AN EB BUILDER OF HOPE!!! www.EverlastingButterfly.com Yahoo Web Hosting |
