WHAT's EB.com UP TO THESE DAYS?
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Unfortunately we will not be able to attend the 2nd Annual Jennifer Deprizio
Charity Golf Tournament in Melbourne, Florida on January 20th. Shirley Jones
has organized this tourney to raise money for Debra, in honor of her granddaughter,
Jennifer Deprizio, who passed away at age 25 in May 2005. Last year's event was
a great success raising almost $17,000. Click here to see pictures from the event.
We will be sending copies of the EB Awareness Video "Butterfly Children" to Shirley
to help increase awareness.
TO READ MORE ABOUT THIS EVENT YOU CAN VISIT THE EB Billboard.
Charity Golf Tournament in Melbourne, Florida on January 20th. Shirley Jones
has organized this tourney to raise money for Debra, in honor of her granddaughter,
Jennifer Deprizio, who passed away at age 25 in May 2005. Last year's event was
a great success raising almost $17,000. Click here to see pictures from the event.
We will be sending copies of the EB Awareness Video "Butterfly Children" to Shirley
to help increase awareness.
TO READ MORE ABOUT THIS EVENT YOU CAN VISIT THE EB Billboard.
| We have recently posted an ad for the website on our local Community Television station MCTV 22. They were so great at getting us on the channel, which usually comes with a cost. After they found out what the site was about, they did everything free of charge. We are very excited and hope that it sparks curiosity for all those who see it. It plays about 6 times and hour and is usually running about 2/3 of the day, so air time will not be an issue. We are going to send this advertisement to other local tv stations to help spread awareness. Below is a copy of our television ad. Posted 09-14-05 |
| Over the past couple of months EverlastingButterfly.com has recieved some great feedback from our displays and business cards at two local malls. Roman Delight Pizza has been generous enough to open up their counters to help spread awareness. We currently have them at their Salem NH & Concord NH locations. Since they have the best pizza, calzones, pasta, and more around, we expect to have EB awareness continuously climb at a rapid pace. EB.com sends their thanks to Joe & Vico!!!!! visit www.romandelightpizza.com |
Recently we visited the Butterfly Place in Westford
Massachusetts. It is was such an incredible
experience to have butterflies flying all around you,
especially when they land on you. Below are some
pictures from our recent visit.
Massachusetts. It is was such an incredible
experience to have butterflies flying all around you,
especially when they land on you. Below are some
pictures from our recent visit.
EB AWARENESS VIDEO
| Updated 01-09-07 Our Eb Awareness Video (PC & DVD Format) is complete, and is free for anyone interested in receiving one. Just send us an email with your name and address, and we will drop one in the mail. All we ask is that the video be used for the sole purpose of spreading awareness. The families in the video were kind enough to allow us use of their photos, which in some incidences are graphic, so we would appreciate the video to be used in the manner it was created for. ! WANT A COPY OF THE EB AWARENESS VIDEO: EPIDERMOLYSIS BULLOSA- "The Butterfly Children" |
| EverlastingButterfly.com sends a huge thanks to these great supporters. With everyone's help, we can kick EB's butt |
| AWARENESS IS THE KEY TO SUPPORT, WHICH IS THE KEY TO FINDING A CURE! |
| www.EverlastingButterfly.com Yahoo Web Hosting |
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